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    • Home
    • GENERAL RESOURCES
    • ADVISORY COUNCILS
    • CLINICAL TRIALS
    • DISEASE SPECIFIC
    • GENETIC TESTING
    • GENOME SEQUENCING
    • INDIANA RESOURCES
    • NEWBORN SCREENING
    • PATIENT ORGANIZATIONS
    • PODCASTS & WEBINARS
    • RARE DISEASE DAY
    • RESEARCH
    • UNDIAGNOSED & UNNAMED
    • WISH GRANTING ORGS

Rare Disease Resources

Rare Disease Resources Rare Disease Resources Rare Disease Resources
  • Home
  • GENERAL RESOURCES
  • ADVISORY COUNCILS
  • CLINICAL TRIALS
  • DISEASE SPECIFIC
  • GENETIC TESTING
  • GENOME SEQUENCING
  • INDIANA RESOURCES
  • NEWBORN SCREENING
  • PATIENT ORGANIZATIONS
  • PODCASTS & WEBINARS
  • RARE DISEASE DAY
  • RESEARCH
  • UNDIAGNOSED & UNNAMED
  • WISH GRANTING ORGS

RESEARCH

Boler-Parseghian Center for Rare Disease - University of Notre Dame

Galvin Life Science Building
Notre Dame, IN 46556  

(574) 631-8831 

www.crnd.nd.edu



Chan Zuckerberg Initiative

www.chanzuckerberg.com 



Indiana Biobank

The Indiana Biobank is a statewide initiative, co-developed by Indiana University School of Medicine and IU Health to collect blood specimens through the Indiana Biobank for genomic sequencing. The specimens and information can be used in research to find better treatments for diseases of today and the future. 

www.indianabiobank.org



Indiana Biosciences Research Institute

www.indianabiosciences.org



Indiana CTSI (Clinical and Translational Sciences Institute)

The Indiana CTSI has research partnerships with Indiana University, Purdue University, the University of Notre Dame, and Regenstrief Institute, and also has strong ties to many non-academic partners that include community, health care, governmental, and corporate stakeholders across the state. Furthermore, the Indiana CTSI engages with the public at every level of research, from basic science to patient care and community health. 

www.indianactsi.org



Rare Diseases Clinical Research Network

www.rarediseasesnetwork.org 

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