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  • More
    • Home
    • GENERAL RESOURCES
    • ADVISORY COUNCILS
    • CLINICAL TRIALS
    • DISEASE SPECIFIC
    • GENETIC TESTING
    • GENOME SEQUENCING
    • INDIANA RESOURCES
    • NEWBORN SCREENING
    • PATIENT ORGANIZATIONS
    • PODCASTS & WEBINARS
    • RARE DISEASE DAY
    • RESEARCH
    • UNDIAGNOSED & UNNAMED
    • WISH GRANTING ORGS

Rare Disease Resources

Rare Disease Resources Rare Disease Resources Rare Disease Resources
  • Home
  • GENERAL RESOURCES
  • ADVISORY COUNCILS
  • CLINICAL TRIALS
  • DISEASE SPECIFIC
  • GENETIC TESTING
  • GENOME SEQUENCING
  • INDIANA RESOURCES
  • NEWBORN SCREENING
  • PATIENT ORGANIZATIONS
  • PODCASTS & WEBINARS
  • RARE DISEASE DAY
  • RESEARCH
  • UNDIAGNOSED & UNNAMED
  • WISH GRANTING ORGS

RARE DISEASE ADVISORY COUNCILS

Delaware

www.ltgov.delaware.gov/rare-disease-advisory-council


Florida

www.floridahealth.gov/provider-and-partner-resources/rdac


Indiana

www.in.gov/health/cdpc/rare-disease-advisory-council


Massachusetts

www.mass.gov/orgs/rare-disease-advisory-council


Michigan

www.michigan.gov/mdhhs/adult-child-serv/childrenfamilies/hereditary/michigan-rare-disease-advisory-council


Minnesota

www.mnraredisease.org


North Carolina

www.ncrarediseasenetwork.org


Ohio

www.odh.ohio.gov/know-our-programs/ohio-rare-disease-advisory-council 


Pennsylvania

www.pardac.org


West Virginia

www.wvrare.org 

Does your state have a rare disease advisory council not listed above? If so, submit the information below so it may be added to this site!

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