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    • Home
    • GENERAL RESOURCES
    • ADVISORY COUNCILS
    • CLINICAL TRIALS
    • DISEASE SPECIFIC
    • GENETIC TESTING
    • GENOME SEQUENCING
    • INDIANA RESOURCES
    • NEWBORN SCREENING
    • PATIENT ORGANIZATIONS
    • PODCASTS & WEBINARS
    • RARE DISEASE DAY
    • RESEARCH
    • UNDIAGNOSED & UNNAMED
    • WISH GRANTING ORGS

Rare Disease Resources

Rare Disease Resources Rare Disease Resources Rare Disease Resources
  • Home
  • GENERAL RESOURCES
  • ADVISORY COUNCILS
  • CLINICAL TRIALS
  • DISEASE SPECIFIC
  • GENETIC TESTING
  • GENOME SEQUENCING
  • INDIANA RESOURCES
  • NEWBORN SCREENING
  • PATIENT ORGANIZATIONS
  • PODCASTS & WEBINARS
  • RARE DISEASE DAY
  • RESEARCH
  • UNDIAGNOSED & UNNAMED
  • WISH GRANTING ORGS

Indiana

ALS Association - Indiana Chapter

7202 East 87th Street, Indianapolis, IN 46256, United States
Suite 102  (317) 915-9888 



The Arc of Indiana

www.arcind.org



Best Day Ever Foundation

www.bestdayeverfoundation.org



BioCrossroads

www.biocrossroads.com



Boler-Parseghian Center for Rare Disease - University of Notre Dame

Galvin Life Science Building
Notre Dame, IN 46556  

(574) 631-8831 

www.crnd.nd.edu



Indiana Biobank

The Indiana Biobank is a statewide initiative, co-developed by Indiana University School of Medicine and IU Health to collect blood specimens through the Indiana Biobank for genomic sequencing. The specimens and information can be used in research to find better treatments for diseases of today and the future. 

www.indianabiobank.org



Indiana Biosciences Research Institute

www.indianabiosciences.org



Indiana CTSI (Clinical and Translational Sciences Institute)

The Indiana CTSI has research partnerships with Indiana University, Purdue University, the University of Notre Dame, and Regenstrief Institute, and also has strong ties to many non-academic partners that include community, health care, governmental, and corporate stakeholders across the state. Furthermore, the Indiana CTSI engages with the public at every level of research, from basic science to patient care and community health. 

www.indianactsi.org



Indiana Department of Health

www.in.gov/health


Indiana Department of Insurance

311 W. Washington Street Suite 300
Indianapolis, Indiana 46204-2787

317-232-2385



Indiana Disability Services

www.in.gov/fssa/disability-services


Indiana Family to Family

www.inf2f.org


Indiana Family & Social Services Administration Benefits Portal

fssabenefits.in.gov


Indiana Medicaid/Health Plans

www.in.gov/fssa/medicaid-health-plans



Indiana Minority Health Coalition

 3737 N Meridian St #300 Indianapolis, IN 46208

(317) 926-4011

www.imhc.org



Indiana Newborn Screening

www.in.gov/health/gnbs/files/NBS-Conditions-List.pdf


Indiana Rare Disease Advisory Council 

www.in.gov/health/cdpc/rare-disease-advisory-council



Indiana Wish

www.indianawish.org



IU Health Undiagnosed Rare Disease Clinic

medicine.iu.edu/genetics/clinical-care/undiagnosed-and-rare-disease 



Muscular Dystrophy Family Foundation

www.mdff.org

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