NORD (National Organization for Rare Disorders) RARE DISEASE DATA BASE
"We provide disease-specific information and resources to help you no matter where you are in your journey."
www.rarediseases.org/rare-diseases
Other disease specific listed alphabetically by the name of the disease:
ALS (Lou Gehrig's Disease)
www.ninds.nih.gov/health-information/disorders/amyotrophic-lateral-sclerosis-als
Angelman Syndrome
www.ninds.nih.gov/health-information/disorders/angelman-syndrome
Childhood Cancer
www.elevatechildhoodcancer.org
Duchenne Muscular Dystrophy
Muscular Dystrophy
SMA (Spinal Muscular Atrophy)
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